June 23rd, 2020

Update on James: James has had an eventful week. Last Monday he had an echo which found that he has two blood clots in his lungs. The doctors think that these blood clots came from his old clot in his PICC line. Due to these clots he was put on a blood thinner IV called Heparin. This could negatively affect his brain bleeds so we have been having head ultrasounds every other day. Those luckily have been stable and aren’t getting worse. Today the Hematologist decided that James can switch to a different medication, Lovenox, as a shot. This is good because once his levels are stable he will hopefully be able to go out of the NICU and into either the Infant Care Center (ICC) or Special Care Center. He has to be off of all IVs in order to leave the NICU.

James also had another eye exam. This showed that his eyes have gotten a bit worse, and he is now in Stage 2 of Zone 1. All we can do for now is wait and hope that his follow up exam next week will be better.

James is now breathing through Low Flow 1/2 liters, which is very good. He is 4 pounds 10 ounces and 16 inches long!

Update on Vera: Vera is still doing well. She had an eye exam like James, and hers showed no changes from her last one. She is in Stage 1 of Zone 1. The ideal diagnosis would be Stage 1 of Zone 3. Both babies have a ways to go with this so we just have to wait patiently.

Vera is off of ALL breathing apparatuses! She is breathing 100% on her own. Vera is now 4 pounds 4 ounces and 16.5 inches long!

Both babies have been eating my milk and donor milk through a feeding tube, and will be transitioned onto formula this week. They will still be getting some of my milk, but I am not yet able to provide enough for both of them full time. Jef and I are anxiously awaiting the move out of the NICU and into another unit. Vera is ready but we are waiting on James. They are already 34 weeks gestation, so we will hopefully move units within the next week and then go home in the next six weeks!

Vera with an almost free face! Only have the feeding tube left!
James with an IV on his hand.
James and Vera dressed in matching Batman gear.


  • Rose

    Good to hear their progress and see tbeir precious lil faces. Stay strong, you two are amazing. Prayers for continued milestones.