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    August 22, 2020

    We have come a long way these last few weeks! Vera came home almost three weeks ago and James came home almost one week ago. They will be four months old next Thursday, or three weeks adjusted. Update on Vera: Vera came home two days before their due date. It wasn’t easy, she took several weeks to get a hang of drinking from a bottle. Since she got home she has been doing well. She gained half a pound in her first week home. We found a pediatrician that is less than five minutes away from our house and we have been very happy with them. Vera has some follow…

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    July 26, 2020

    It has been a while since I wrote a post! We have been enjoying our time in the ICC (Infant Care Center) and have been working on getting ready to have our babies home. James and Vera will be 3 months old tomorrow! They are 38weeks and 4 days gestation. Update on James: James has been doing pretty well. His brain bleeds are finally evolving, getting better. He still has Retina of Prematurity in his eyes, he will have another eye exam tomorrow. He is still being treated for a blood clot in his lungs, which is slowly improving. He has been having problems with nasal congestion for the last…

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    July 7, 2020

    Things have been going pretty well lately. We moved to the Infant Care Center (ICC) about two weeks ago. We are still in the same hospital. Here we will focus on feeding and growing until the babies are ready to go home. We have been practicing breast feeding daily with some success, and today we tried bottle feeding for the first time. Both babies did well and got between 5-10 ml! They will now continue to practice bottle feeding with the nurses each day, and I will continue to breastfeed when I am at the hospital. Once they are successfully getting all milk from bottle or breastfeeding, no more feeding…

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    June 23rd, 2020

    Update on James: James has had an eventful week. Last Monday he had an echo which found that he has two blood clots in his lungs. The doctors think that these blood clots came from his old clot in his PICC line. Due to these clots he was put on a blood thinner IV called Heparin. This could negatively affect his brain bleeds so we have been having head ultrasounds every other day. Those luckily have been stable and aren’t getting worse. Today the Hematologist decided that James can switch to a different medication, Lovenox, as a shot. This is good because once his levels are stable he will hopefully…

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    June 14, 2020

    First post for almost a week…the week was pretty good overall. We did get the results from the eye exam. Both babies have Zone 1 stage 1 ROP, which basically means that their blood vessels in their eyes are still immature and developing. The doctors said that this diagnosis was expected considering how premature the twins were. We will have another exam next Monday which will hopefully show some improvement. A big highlight of this week is that Jef and I both got to hold both babies together for the first time! This was very exciting and special. Update on James: James has been doing well on the high flow…

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    June 8, 2020

    James and Vera had a good and uneventful last week. They are in the “boring” stage, for the most part, where they are really just growing. Today was an exception to this, as we had a couple of new milestones! Update on James- James has been doing well. His kidney issues settled down. He still has low hemoglobin but he is not showing signs of that clinically so he still doesn’t need intervention. As of today James is off of CPAP (!!!) and on a high flow nasal cannula for oxygen. He also had his first eye exam today and we will have results from that by Wednesday. James also…

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    June 2, 2020

    We have had several nice, stable days recently. The main situation has been trying to stay calm and optimistic during all of the events going on in Minneapolis right now. The hospital has gone on lockdown almost every night this past week but the babies have stayed safe. We are very grateful for the caring staff at Children’s. Update on James: James has had some great days recently. His kidneys and lungs clinically seem to be doing a lot better. We are still waiting to see if his brain bleeds will improve, but he won’t have another head ultrasound until next Monday. The one thing with him this week is…

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    May 29, 2020

    We have had a few good days with our babies! We celebrated their 1 month birthday on Wednesday, which was also 30 weeks gestation. Due to this milestone they both got new and different isolettes and had their first vaccine, Hepatitis B. Update on James: James has been doing very well for the circumstances. His oxygen levels have looked good and he has been weaned down a bit on the CPAP. We had one scare where his heart rate was very high, but the doctors thought that was due to his new caffeine dose and so they lowered that, which helped. His kidney function has looked good this week. We…

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    May 25, 2020

    The past few days have been pretty stable. Update on James: James has been doing pretty well since he switched to CPAP. His lungs are looking clearer on his xrays. His kidneys have also been looking better. He had another head ultrasound that showed no change since last week which is good. We have been able to hold him every day 🙂 Also he is now 2 lbs 11 ounces and 38.5 centimeters long. Update on Vera: Vera has also been pretty stable. Her main issues are that her belly is sensitive and gets full of air often, and she has apneic episodes at least once a day in which…

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    May 20, 2020

    Today the twins are already 29 weeks gestation, and 3 weeks 2 days old. Days go by slowly but time overall has gone by very fast! Today has been a very good day so far, so good that it feels weird and not normal. We are hoping all of these good things last. Update on James: Yesterday James had another renal ultrasound to check on his blood clot. The results showed that the blood clot had disappeared, probably when his PICC line was removed. We left last night with goals for James to continue to improve his kidney health as well as be on lower oxygen on the ventilator. When…